Ellie’s Law (H.R. 902 & S. 895) aims to establish the first-ever dedicated funding stream for critical brain aneurysm research. This funding will drive breakthroughs in prevention, improve outcomes for survivors, and enhance their quality of life.
Brain aneurysms are among the most underfunded disease research projects in the U.S. regarding the number of Americans impacted and the tremendous loss of life, the decrease in the quality of life for survivors, and the long-term medical costs for families affected.
“Ellie’s Law” is a bipartisan bill introduced by Reps. Yvette Clarke (D-NY) and Brian Fitzpatrick (R-PA) (H.R. 902) and Sen. Richard Blumenthal (D-CT), and Sen. Markwayne Mullins (R-OK) (S.895) and was drafted in consultation with members of the brain aneurysm medical and research communities.
Ellie’s Law would provide the first ongoing dedicated research funding stream for breakthroughs in preventing potentially fatal brain aneurysms from rupturing and improving the long-term medical consequences and quality of life issues for aneurysm survivors.
Ellie’s Law honors five women who passed away as a result of a brain aneurysm: 14-year-old Ellie Helton; WABC Eyewitness News reporter Lisa Colagrossi; Kristen Shafer Englert, 24 who died shortly after the birth of her first child; Teresa Anne Lawrence, devoted mother of three; and 27-year-old Jennifer Sedney who passed away on Christmas Day in 2013.
Is your legislator a co-sponsor of Ellie’s Law? Find out by clicking the links below and join the movement for change!
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